Many people are affected by dementia at end of life. Dementia is not a specific disease but is rather a general term for the impaired ability to remember, think, or make decisions that interferes with doing everyday activities. Alzheimer’s disease is the most common type of dementia. Because dementia is a general term, its symptoms can vary widely from person to person. It can be a very isolating and confusing issue for those living with the disease as well as their caregivers, which are often family.
We’ve gathered a few resources to help if you or someone you love, are dealing with dementia.
The American Alzheimer’s Association works on a national and local level to provide care and support for all those affected by Alzheimer’s and other dementias. Their site offers resources, information and online interactive tools.
https://www.alz.org/help-support/resources
For those in Canada, the Alhzeimer Society has a series of helpful videos and other resources.
https://alzheimer.ca/en/help-support/dementia-resources/video-resources
The Family Caregivers Alliance (FCA) has provided services to family caregivers of adults with physical and cognitive impairments, such as Parkinson’s, stroke, Alzheimer’s and other types of dementia. Their website provides resources for Caregivers.
https://www.caregiver.org/resource/caregivers-guide-understanding-dementia-behaviors/
The Caregiver Action Network is designed to provide an online toolbox to help to those caring for family.
https://www.caregiveraction.org/resources/10-tips-family-caregivers
This site is specifically set up to help those aging as well as their families by providing information about the issues that effect an aging population. Here they offer 50 essential dementia resources.
For those in Austrailia, Dementia Australia is the national peak body supporting people living with dementia, their families and carers.