Nothing to Fear: Demystifying Death to Live More Fully by Julie McFadden
Known online as “Hospice Nurse Julie”, Julie McFadden shares the valuable lessons she’s learned in her fifteen years as an RN in the ICU and in hospice. McFadden compassionately and expertly blends emotional insight and practical advice. Nothing to Fear demystifies end-of-life care for both patients and caregivers, covering topics including the biological details of […]
The Stars Will Still Be There by Nicola Nuttall
Nicola and Mark Nuttall’s 18-year-old daughter Laura found out she had only 12 months to live, following a diagnosis of the most aggressive form of brain cancer, glioblastoma multiforme. This diagnosis changed the family forever. But while they struggled to adjust and searched for new treatments, Laura made a decision: she would live her life […]
Resources for Dealing with Dementia
Many people are affected by dementia at end of life. Dementia is not a specific disease but is rather a general term for the impaired ability to remember, think, or make decisions that interferes with doing everyday activities. Alzheimer’s disease is the most common type of dementia. Because dementia is a general term, its symptoms […]
Listen: How to Find the Words for Tender Conversations by Dr Kathryn Mannix
From the author of With the End in Mind comes a book about holding conversations about death, dying, forgiveness, apology and legacy. Dr. Kathryn Mannix spent her medical career working with people who have incurable, advanced illnesses. Focusing on palliative medicine, Dr Mannix is dedicated to optimising quality of life even as death is approaching. […]
WYD Podcast with Carol Reid: Grieving Before Death
Carol Reid and her husband were looking forward to spending their retirement together. But when Jim was diagnosed with frontotemporal dementia , Carol found that although she had worked as a palliative care nurse, it did not prepare her to deal with the gradual loss of her own loved one.
Thanatophobia and Overcoming the Fear of Dying
While it is perfectly normal to have a fear of death, what happens when it becomes a phobia, it can affect the way we live. When did you first realize that you were going to die? I would have been around nine or ten. It was Christmastime, late at night when the rest of […]
Movies that deal with Dementia
Dementia is not a single disease. It’s an overall term to describe a collection of symptoms that one may experience if they are living with a variety of diseases, including Alzheimer’s Disease. Many face dementia-related issues at the end of their lives and others find themselves as caregivers. Yet, a study published in 2014 found […]
Seeing the GEMS Workbook by Teepa Snow
Seeing The GEMS Workbook comes from Teepa Snow, a dementia care specialist, and is perfect for both family and professional care partners of anyone living with brain change. So many of our loved ones will face issues with dementia at the end of their life. It can be confusing and frustrating for those watching the […]
Postal Service for the Dead
One of the hardest things when dealing with the reality of death is being faced with the fact that you’ll never talk to your loved one again; that the words you want to say will never be heard. But they can be written down and mailed. Based in Los Angeles, Postal Service for the Dead […]
Time to Pause: A Special 3 part podcast looking at innovative leadership in the end-of-life-space Part 3- Briana Simmons
Briana Simmons is a lifecycle facilitator for black and LGBTQIA+ communities. She is also the founder of Unearthing Tradition, and works to reclaim dignified life cycles, and offering lifecycle support that creates unapologetic healing spaces for black folks.